The U.S. spends more money
on health care than any other country. But the nation's 44 million uninsured
face a system of ...
Second-Class Medicine
"I'm seeing two of you," Keeshun Lurk told a visitor. "I have
double vision in my left eye." His fingers circled the lump on his neck.
"I have bad migraines and an infected lymph node." Lurk, 20, had not
seen clearly for a week; his head began throbbing almost a year ago.
Lurk lives in Washington, D.C., three miles
from the U.S. Capitol, where for four decades lawmakers have debated but
ultimately defeated legislation that would guarantee health-insurance coverage
for all Americans. He is one of 44 million people across the country without
health insurance--a number that continues to grow, despite piecemeal attempts at
reform.
In April, eight months after he first sought
treatment, doctors had yet to diagnose the cancer growing in his head.
Lurk's journey through the health-care maze
began at the very hospital where he worked, the Washington Hospital Center. He
was a "floater," rotating among departments, logging in patients, and
keeping track of patient records. But as a temporary worker, he was not offered
health insurance.
The pounding in his head began last summer,
about the time he started at the hospital; his mood changed from euphoric at the
prospect of a new job to lethargic. As the headaches grew worse, he sought help
at the hospital's emergency room, where doctors diagnosed migraines and an ear
infection and sent him home with prescriptions for Motrin and an antibiotic.
The pain continued, and he began missing work.
"I really liked my job," he said. "But I couldn't function."
In November he stopped going altogether.
In December he visited the Washington Free
Clinic. A nurse practitioner gave him what the clinic later said was an
"extensive physical examination" and "patient education."
Lurk remembers she told him not to eat too much pork. He missed several
scheduled appointments because he said his migraines had gotten better.
By April, Lurk was back at the clinic. This
time the clinic asked the Archdiocesan Health Care Network for a referral to a
general surgeon for a biopsy of the lump on his neck. The network asks
specialists to treat patients referred by community clinics--in essence, it
rations specialty care to those who cannot pay.
Dianne Camp, who works for a consumer-health
advocacy program and who happened to live in Lurk's apartment building, also
pushed for his care. "It was hard to see this young man lying on the floor
in pain taking Advil and Tylenol," she said. Camp called a doctor she knew
at another free clinic, who finally did a biopsy, but the results were
inconclusive. The doctor arranged for a visit to an ophthalmologist, whose
clinical judgment told her something was seriously wrong.
By this time so many calls had been made on behalf of Keeshun Lurk that the
logjam blocking his care began to break apart. He finally got medical
appointments and a CT scan, and he shuttled back and forth among doctors at D.C.
General and Howard University Hospital, where he received tests and another
biopsy that revealed the cancer at the back of his nasal passage. Lurk is now
being treated with radiation and chemotherapy, which doctors say will give him a
good chance for a cure.
The next hurdle is paying for treatment. Lurk
is too poor to buy insurance and too old for the D.C. Healthy Families program.
He was ineligible for Medicaid because his part-time work, and later his
unemployment-insurance benefits, nudged him over the income limit. Now that
those benefits are gone, he qualifies for Medicaid until his 21st birthday. But
that's just a few weeks away. If he can prove he's disabled, he might have
Medicaid for another year. After that, who knows?
Swelling ranks of the uninsured
Such is the lot of the uninsured in the
District of Columbia and all across the U.S. at a time of unparalleled
prosperity in the richest country in the world.
To many Americans, the numbers are
familiar--44 million people without health insurance, or nearly 20 percent of
the population under age 65. Eighty-five percent of them are working or in
families where someone is working, mostly at low-wage jobs that offer no health
coverage. Nearly one-third of the uninsured who work are offered coverage by
their employer or through a family member's employer but decline it for
themselves or their dependents because the price is so high--and getting higher.
More than half of the uninsured have been without coverage for longer than two
years.
More people are uninsured now than when President Clinton took office eight
years ago promising health insurance for every American, and the long-term trend
points north. Based on population growth alone, 47 million people will have no
insurance five years from now.
Less familiar is what happens to the uninsured
when they get sick. "The uninsured are truly an invisible population,"
says Jane Zwiers, a registered nurse who runs the First Presbyterian Church
Health Clinic in Kalamazoo, Mich. "The truth of the matter is no one wants
to know about them."
To assess how people without coverage fare in the health system, Consumer
Reports undertook a six-month investigation that included interviews with
more than 130 doctors, hospitals, clinics, health-policy experts, and uninsured
people themselves. The key finding: Millions without health insurance receive
second-class health care, if they get any at all. Consider that:
- If you're uninsured in America, the care you get depends on chance--how old you are, what county you live in, what piecemeal programs exist, your diagnosis, how much money you can scrape together. And it depends on your perceived worthiness. Babies and kids are more "marketable" when it comes to claims on the public purse than 20-year-olds like Lurk or millions of older adults, who don't have the same cachet with politicians. Care is often "primitive, irregular, unpredictable, and uneven," says Fitzhugh Mullen, a physician who treats the uninsured at the Upper Cardozo Health Center in the District of Columbia.
- A two-tiered system of care exists for chronically ill patients: the top tier for those who have the means to buy state-of-the-art medications and technology, and the bottom tier for those who do not. Uninsured patients with asthma, diabetes, or hypertension are often denied the care readily available to those who have insurance. "A lot of physicians, even those willing to take uninsured patients, are reluctant to make referrals or do necessary lab testing to deliver the same standard of care," says William Jagiello, a Des Moines physician. So a person in the midst of a seizure gets treatment for the seizure but no investigation to determine the cause. A child in the middle of an asthma attack may be treated with medicine that opens the air passages but won't get medications to prevent future attacks.
- Waiting lists mount and rationing occurs for most specialty care. If you're uninsured and need a dermatologist to remove a mole, a cardiologist to examine your arteries, or even a dentist to treat an abscess, you need advocates who will beg or borrow services or otherwise try to link you to providers willing to give tests and treatment. "We have to depend on favors," explains Dr. Maureen Connolly, the medical director at the Iowa City Free Medical Clinic.
- These problems are intensifying. Welfare
reform has meant more people leaving the welfare rolls for jobs--jobs
that pay too much to qualify workers for government health coverage
like Medicaid but that offer no affordable health insurance of their
own. At the same time, health-care providers that in the past have
cared for the uninsured in part with leftover money from insured
patients have seen those funds squeezed by managed-care cost cutting.
In the end, more people need care, but the system is increasingly
unable to provide it. "The old social contract has broken
down," says Dr. Spencer Foreman, president of Montefiore Medical
Center in New York City. "Not that it worked terribly well to
begin with."
The result is that the allegorical safety net--emergency rooms, community clinics, pharmaceutical-industry programs, hospital charity care--doesn't catch everyone in need. At Zwiers's clinic in Kalamazoo, 500 people showed up in 1995. This year 5,000 will come. In February, the People's Community Clinic in Austin, Texas, turned away 153 children and 184 women who needed checkups, and told 94 pregnant women they had to wait eight weeks for their first prenatal visit.
The emergency-room myth
During the health-care-reform debate in 1993,
Fred Barnes, a conservative commentator, wrote in The American Spectator,
"Federal law (Sec. 9121 of the Consolidated Omnibus Budget Reconciliation
Act of 1985) requires medical screening of everyone requesting care at a
hospital emergency room. If treatment is needed, it must be provided. What this
adds up to is 'universal access' to health care in America."
That notion--that universal health care is
already available--has stuck to this day. "If they get sick or have an
accident, they can go to the emergency room. Everyone in Texas knows they are
going to be taken care of," says Dianne Longley, insurance director at the
Texas Department of Insurance. "Right now there are not people going
without care," echoes Pat Hayes, executive vice president of the Seton
Healthcare Network in Austin.
For an uninsured person, health care means the
emergency room at Brackenridge Hospital in Austin, Broadlawns in Des Moines,
Montefiore in the Bronx, or Henry Ford in Detroit, where the price of treating a
sore throat may be three to five times as high as in a doctor's office.
More than half of the 90 million visits to
emergency rooms in 1992 were for non-urgent care like sore throats. According to
The Commonwealth Fund, a nonprofit philanthropic organization interested in
health care, 63 percent of uninsured men and 44 percent of uninsured women
between ages 18 and 64 had no regular doctor in 1998.
The emergency room is not a doctor's office, the medical home for most
middle-class Americans. It is not the place to get primary care, follow-up care,
or care for chronic conditions. At the emergency room, uninsured diabetics
receive treatment only when their blood sugar has climbed so high or sunk so low
that their life is in danger. Emergency-room physicians don't routinely monitor
diabetics' blood sugars or lipids, check their feet, or examine their eyes for
signs of impending blindness.
The uninsured who come to the emergency room
do get prescriptions--prescriptions they often cannot fill. In Ann Arbor, Mich.,
emergency-room doctors at the University of Michigan Hospital gave a man
suffering from bronchitis and sinusitis five prescriptions. Days later, he
showed up at a state-owned mobile van that delivers medical care in poor
neighborhoods. "He had heard that we were paying for people's
prescriptions," says Lynn Klima, a nurse practitioner who coordinates van
services. "Nobody who saw him originally made sure he could get the
medications."
Federal law indeed requires emergency rooms to
stabilize all those who show up at the door. It is illegal to transfer patients
until they are stabilized and out of immediate danger. Between 1986 and 1996, 10
percent of acute-care hospitals violated the law and "dumped"
patients--mostly the uninsured--at other hospitals, according to the
public-interest group Public Citizen. The group said that the number of
violations is probably much higher because many hospitals don't report
violations. "Typically we'll get a phone call that they have an undesirable
patient. They say, 'We want to send them to you,' and we say, 'Do you really
want to do that?'" says Howard Freed, an emergency-room doctor at D.C.
General, a public hospital that cares for indigent patients.
The phone call usually comes after a
"wallet biopsy"--ER jargon, Freed says, for a hospital's examination
of a patient's job, insurance coverage, and ability to pay. Says Freed: "If
the biopsy comes back negative, they are sent here." And any place else
that will take them.
Jesus Vivas, 21, has lived in Texas for six
years. Born in Mexico, he came north to live with relatives and earn his living
selling food at construction sites in booming Austin. In January he got a better
job, earning $55 a day painting houses that were under construction. Then one
day he fell off a ladder. Although he was bent over in pain, his face swollen
from a fracture, and his arm frozen in the air, his bosses sent him home rather
than to a hospital. "The contractors said they didn't have any money and
weren't responsible for the medical expenses," Vivas said through an
interpreter.
Later, relatives took him to the emergency
room at Brackenridge Hospital, where doctors put a splint on his broken right
wrist, gave him pain medication, and referred him to a physician's office. But
there, he said, he was told that since he didn't have insurance, no doctor would
see him.
Three weeks later he showed up at the People's
Community Clinic, which sees all patients even if they have no money. Doctors
diagnosed a fracture of his left wrist, too, which they say emergency-room
doctors had missed. Vivas's left hand is still stiff, and he has limited ability
to move his wrist and a big bill he cannot pay. His medical expenses total some
$4,000, including $3,800 for emergency-room services. The law doesn't say that
emergency care has to be free.
People's Community Clinic sees a lot of
immigrant laborers, documented and undocumented, without health insurance.
Recently, the clinic got a call from a construction company that brought in 400
laborers to build a large downtown office complex. The company wanted to know if
the clinic provided health care. "Who gained the benefit here?" asks
the clinic's executive director, Roseanna Szilak. "The contractor profited
because he did not have to bear the cost of providing health-insurance coverage,
and the savings could be reflected in a lower bid."
Care at the clinics
In storefront walk-ups, church basements, and community and day-care centers,
clinics set up shop to provide primary care for the uninsured, often asking
doctors to donate their time. They pull together exam tables and boxes of
medicine samples doctors have discarded, and they decorate the walls with
colorful posters telegraphing information about vaccines and breast exams.
The federal government funds some 3,000
clinics, and last year Congress channeled about $1 billion in federal money to
them, including a $94 million increase to accommodate the huge demand for
services. The number of uninsured people seeking care from these clinics is up
45 percent over the past decade, says Earl Fox, administrator of the Health
Resources and Services Administration. Still, there is no money for 12 new
clinics and 46 expansions that already have been approved. By contrast, Congress
gave nearly $18 billion to the National Institutes of Health for research on
treatments and cures for disease--therapies that may never reach the uninsured.
Hundreds of other clinics receive no federal
money and depend on donations as well as state, local, and private grants.
By the time the uninsured do show up at a
clinic, it may be too late. "We see people whose conditions could have been
reversed if they had access to care," says Dr. Jim Brand, the medical
director at the People's Community Clinic.
Ben Gonzales is one such patient. Old beyond his years and trembling from
Parkinson's disease, Gonzales, 57, carried insurance most of his working life.
When the cabinet maker for whom he worked laid off workers, he lost his job. His
wife's employer, a nonprofit organization, offered coverage for dependents but
at a price. When her employer reduced staff salaries across the board, the
family had to choose between coverage for Gonzales or their daughter. They
guessed wrong.
For a year Gonzales did not seek treatment for
gradual weakness, fatigue, poor balance, and episodes of incontinence. When he
finally showed up at Brand's clinic, he was sent to a neurologist who agreed to
see him for free. The neurologist wrote in his chart: "I can't believe that
he has had these symptoms for one year and has not sought help."
Doctors diagnosed cervical stenosis, which causes compression of the spinal
cord. An operation might have relieved Gonzales's symptoms, but he did not have
one. In the meantime he developed Parkinson's disease. "So far, nobody will
operate on him," Brand says.
Care often depends on the assorted pots of
money clinics have available. Roberta Feinberg directs two clinics in central
San Diego: the Linda Vista Health Care Center and the Mid-City Community Clinic.
Her two centers treat 65,000 people each year on a budget of $5.7 million built
from 23 different funding sources. Patients must fit a matrix of eligibility
requirements set by each funder; in other words, their age, sex, diagnosis, and
immigration status must match the criteria.
If a child has an ear infection in January,
and the family's income is below 200 percent of the federal poverty level, or
$34,100 for a family of four, funds are available to provide the $65 visit for
free, including lab work and medicines. But by April, the clinic has spent that
money. "The kid suffers unless the mother has money to pay on a sliding fee
scale," Feinberg explains. "They manage the condition with
Tylenol."
Occasionally, special programs exist to treat
people with chronic diseases. The catch: There isn't enough money to serve
everyone in need.
In Washington, D.C., La Clinica del Pueblo
could enroll only 110 diabetics in a program to help them manage their disease
and thus prevent kidney failure, blindness, and amputations. Those who don't
participate "are not getting as good care," says Dr. Andrew Schamess,
the clinic's former medical director.
Sometimes there is special funding for early
detection of disease. But there may be no money for follow-up care and
treatment. Feinberg's clinics, for example, get money from the state of
California to screen for breast cancer, a high-profile disease popular with
lawmakers, but not a dime to pay for mastectomies or chemotherapy. If cancer is
detected, the poorest women can apply for Medicaid and hope that their income is
low enough. If a woman doesn't qualify, the clinic sends her on to specialists.
"We hope to God they'll be kind-hearted enough to take her," Feinberg
says.
Some women do lose out. During the four to
seven years following an initial diagnosis of breast cancer, uninsured women are
49 percent more likely to die than women with insurance, according to The New
England Journal of Medicine.
Begging for specialists
It is Beth Ann Fromm's job as director of
Catholic Charities Specialized Service Networks in Washington, D.C., to help
cajole the 9,846 specialists in that city into treating the uninsured. "It
has been hard to recruit physicians," Fromm says. About 300 donate their
services. To get an MRI, patients wait four months; for a CT scan, two months;
for general surgery, six to eight weeks. "That's unacceptable but there's
nothing we can do," she says.
Staffers at other clinics also underscore the
difficulty of obtaining specialty care and say they have to prioritize their
patients. "Is this the one we should send for an MRI or should we sit on
this?" Zwiers says she asks herself. Each time a patient needs a
specialist, clinic workers flip through the Rolodex to find someone they haven't
asked in awhile. Feinberg is blunt: "You have to beg. I've had people say,
'I'll take one patient a month or two a month.' They'll say, 'I'm very busy,'
and I say, 'This is what you have to do to give back to the community because
you have that Ferrari parked outside.'"
Once a doctor says yes, patients sometimes
face agonizingly long waits for diagnosis and treatment. In December Schamess,
now a deputy director at the D.C. Department of Health, examined a woman who
appeared to have cancer of the cervix, and referred her to the Archdiocesan
Health Care Network for a specialist. In February, she saw a gynecologist who
definitively diagnosed the disease, but in late April, she was still waiting for
a hospital to donate time in an operating room for surgery to rid her of the
cancer. Says Schamess, "It has always been shocking to me that hospitals
make so few services available to the uninsured."
And some people just don't get specialty care,
or even surgery, unless it's done on an emergency basis. Dianna Schroder, 51,
cleans buses for a living. She has arthritis, migraines, an anxiety disorder,
and high cholesterol. Doctors say she can work only four hours a day, which
gives her monthly take-home pay of $400. Her employer, the Coralville, Iowa,
Transit System, pays half of the health insurance premium for part-time workers.
But that means she would have to pay $122 a month. And when her financial
decisions are as basic as choosing between shampoo and a carton of eggs,
insurance is out of the question.
One day last year her left side became weak
and numb. Her mouth drooped. She made her way to the Iowa City Free Medical
Clinic, where a doctor diagnosed a stroke and sent her to a specialist.
"The doctor said he normally would have run tests," Schroder recalled.
"He said there wasn't anything that he knew of where I could get free
testing. He said that if I had insurance or money, there were some tests he'd
run and the only thing he could do was give me aspirin."
No one checked her carotid arteries for
blockages that could signal the risk of another stroke--standard procedure for
someone with her medical history. "What are you going to do?" she
asks. "You hope you don't have another stroke, and if you do, you hope you
survive it."
Searching for dentists
On a morning last February when the thermometer sank to 0° F, 30 people had
lined up by 8:15 outside the Hope Medical Clinic in Ypsilanti, Mich. More came
when the doors opened. This day the clinic was accepting new patients for dental
care, a service in short supply for low-income people across the country. In the
first hour, the clinic took in 45 new patients and turned 27 away. Hope turns
down 100 each month.
The oral health of those they do accept is so
bad that the typical patient needs seven visits just to stabilize his or her
condition.
In Washington, D.C., "there hasn't been
any ongoing program that integrates screening with dental checkups," says
Robert Cosby, executive director of the Non-Profit Clinic Consortium. Four
health-care programs in the district recently screened 15,000 children ages 2 to
8 for dental problems. The screening turned up only 2,000 children who had
received any care at all. Says Cosby, "Now you have an ethical dilemma:
Where do you send them and who pays for the care?"
The 3,000 federally funded clinics can meet
only 6 percent of the need for dental care. Some clinics have trouble wooing
dentists to work in their facilities; others consider dental services expendable
in the face of what they believe are more pressing medical concerns.
At the dental clinic at Broadlawns Medical Center in Des Moines, the staff keeps
no waiting list; they worry about offering false hope. The wait for major dental
work for adults would be three to four years.
Even poor people who have insurance--primarily those with Medicaid--can't get
dental care. Medicaid is a federal-state program that offers a comprehensive
package of benefits to 41 million Americans. But doctors are allowed to turn
away Medicaid patients, and many do, particularly dentists. They say the states
pay them too little. In the District of Columbia, for example, dentists receive
$31 to X-ray, examine, clean, and apply fluoride to the teeth of a child under
15 insured by Medicaid. They can get more than $100 from other payers.
The real drug problem
At La Clinica de la Esperanza in Des Moines,
Mark Sundet, a physician's assistant, counts out pills for Leonardo Lopez, a
dishwasher at a local steak house who works full time, earning $6.25 an hour. He
has no health insurance. Lopez, 59, has diabetes and blood pressure that spikes
one day and dips the next.
On this day the clinic's supply cabinet held enough samples of Capoten to treat
his erratic blood pressure, but doctors had already given away the Glucotrol he
needed for his diabetes. So they gave Lopez a prescription. "If we don't
have a sample, that's the best I can do," Sundet says. Doctors had no
assurance he would fill it. Thirty percent of those without health insurance
don't fill their prescriptions, because of the cost, according to the Kaiser
Family Foundation's Commission on Medicaid and the Uninsured.
Clinics do what they can to supply medicines,
sometimes paying for them out of their own budgets but most often relying on the
goodwill of nearby physicians who donate unused samples left by pharmaceutical
salespeople. "For a program like ours it's a daily struggle," says
Julie Tiplady, administrator of the Packard Community Clinic in Ann Arbor, Mich.
"People can't get the medication they need."
Clinics are never sure about what samples
they'll have on hand. Every month the First Presbyterian Church Health Clinic in
Kalamazoo, Mich., holds a drug roundup. The clinic sends faxes to doctors,
asking for leftover samples. "Drug runners"--volunteers armed with
garbage bags--go out and scoop up the medicines, then return to the church
basement to see what has come in. Glucophage, for example, a popular medication
for treating diabetes, often turns up short.
Relying on samples can result in compromised
care. When a clinic doesn't have what a patient needs, the patient goes without
until another batch comes in, or doctors substitute medicines that are less
ideal. Nick Yphantides, the physician who runs the Escondido Community Health
Center in San Diego, says he prefers to treat patients with Glucophage, which
can improve lipid levels. But because free samples are scarce and patients have
trouble paying for the medicine on their own, he prescribes an alternative that
is more difficult to take and can cause low blood sugar, but which is a fraction
of the cost. Yphantides says he has had to hospitalize asthmatic children to
bring their asthma under control simply because the clinic had no nebulizers,
which deliver vaporizing medication to the lungs.
Drug-company largess
Some clinics turn to pharmaceutical companies,
whose patient-assistance programs supply free medicines to a small slice of
those who need them. A spokesman for the Pharmaceutical Manufacturers
Association says that in 1998 these programs were offered by some 50 drug
companies and served 1.5 million people, adding, "Our companies are
committed to making sure that people who can't afford their medicines can get
them."
But they can make it difficult. Some companies
limit the number of patients a doctor can enroll. Sanofi Pharmaceuticals allows
each doctor to refer only six patients a year to its drug-assistance program.
Sometimes it takes weeks to determine eligibility and send the drugs. Some
companies require patients to prove how much they earn by showing only pay
stubs, not tax forms. That's often hard for someone who is paid in cash. And
applications can be lengthy and difficult to complete; the one from Glaxo
Wellcome is four pages, each 17 inches long.
"Some of our working people with no insurance have been turned down because
they are over the income limit," says Jean Lyndes, a retired nurse who
volunteers at the Hope Medical Clinic in Ypsilanti.
Boehringer Ingelheim Pharmaceuticals turned down Bobby King, 51, who has severe
hypertension and emphysema and needed a $42 inhaler to help him breathe.
"As you can understand, voluntary programs of this nature must be
established within certain guidelines to ensure their continued existence and to
ensure that we can help the truly indigent. The maximum income has been
exceeded," the company wrote in its denial letter. At Boehringer Ingelheim,
truly indigent means having an annual income of $9,000 or less. Bobby King, a
house painter, earns between $10,000 and $12,000.
The big squeeze
Not only are the uninsured deprived of the
basic standards of health care available to those with insurance, they are also
being squeezed as never before to pay for the care they do get.
Historically, hospitals have covered the costs
of charity care out of money insurance companies paid on behalf of people
covered under their policies and out of federal government reimbursements made
on behalf of people on Medicare. Through the Medicaid program, states often gave
hospitals that served the poor extra payments. In other words, people with
insurance were subsidizing the care of those without.
But today much of the extra money is gone, a
result of lower payments to providers by managed-care companies and the Balanced
Budget Act Congress passed three years ago, which reduced federal payments to
hospitals for care given to Medicare beneficiaries and indigents.
Lower payments to hospitals and doctors mean
HMOs can offer lower premiums to employers, the major buyers of health
insurance, which in turn may require their employees to pay less. And lower
Medicare payments mean lower federal expenditures and theoretically, lower
taxes.
"Employers say, 'Why should I fund those
who are not my employees when it may be society's responsibility?'" says
Dr. Neil Schlackman, senior medical director for Aetna U.S. Healthcare, a
managed-care company that has been a leader in ratcheting down fees to doctors
and other providers. "Whose responsibility is it to cover the uninsured? If
indeed we as a country decide it's the country's responsibility, we should fund
it in some way."
But cost cutting has squeezed all those in the system who had counted on the
extra funds to care, in part, for the uninsured. The American Hospital
Association says that 34 percent of the country's 5,000 nonspecialized hospitals
are now "under stress," meaning that they are operating in the red. A
substantial number of those facilities care for the poor and uninsured. As for
doctors, it's a struggle to give care to indigent patients and keep a practice
afloat, says Austin physician David Wright. "It was the insured patients
who helped provide a cushion for the uninsured. You could make it up in the long
run. You can't do that now."
And so more and more, providers are hounding the uninsured to pay.
Champaign, Ill., is a microcosm of how the big
squeeze plays out. The Frances Nelson Community Health Center, the only
federally funded nonprofit clinic for the poor and the uninsured in the area,
notified patients that the clinic was at risk of losing its federal grant if it
did not collect patient fees. Then it got tough, warning patients that it would
give no more routine appointments to anyone who had an account in collection
until the account was paid in full, and there would be no future appointments
for anyone who had filed for bankruptcy and owed money to the clinic.
"The ultimate coercion is denial of treatment to make them pay a
bill," says Claudia Lennhoff, director of Champaign County Health Care
Consumers, an advocacy group. "In some months they get access and in some
months no access, depending on how fast they pay off the bill."
The bill, of course, isn't merely a deductible or a co-payment--it's the entire
cost of care; there is no insurance company to share the cost. Bills for care in
doctors' offices and hospitals are often far higher than what an insurer would
pay for the same services on behalf of someone with coverage. The uninsured have
no one to broker deals for their care. So patients with very low incomes help
subsidize the lower premiums for more affluent patients who do have insurance.
When the uninsured, and sometimes people who
are insured, cannot pay, many turn to bankruptcy. In 1999, more than 500,000
families who filed for bankruptcy had medical problems, and more than
300,000--or one in four filers--identified an illness or injury as a reason for
filing. Many had bills exceeding $1,000 that insurance did not cover.
Some people just avoid more debt by avoiding
more care. "The safety net isn't free," says Maura Bluestone, who
heads the Bronx Health Plan in New York City. "They all bill, and they all
use collection agencies to go after people. Once you've had that experience, you
think twice about going back."
Some who are desperate have resorted to a kind
of "neighbor insurance," more reminiscent of the Great Depression than
the age of high-tech medicine. In March residents of Clarinda, Iowa, a town of
5,104 near the Missouri River, held an auction and soup supper that raised about
$5,000 for Sharon Wells, 55, who is uninsured and has lung cancer. Medicaid now
pays some of her bills. "I think my benefit money will be enough to keep me
from being badly in debt," she says. Still, collection agencies call.
At the other end of the state, Dr. Connolly at the Iowa City Free Medical Clinic
believes that for the poor and uninsured, the solution involves something far
bigger than soup suppers. "We need to rethink what is right," she
says. "Is it right for people who have insurance to get everything paid for
and people who have no insurance to get nothing paid for? They don't even get
the basics."
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